Pain should not be invisible
Support our mission by sponsoring a member
What We Offer in Our Private Support Group:
-Weekly Video Calls: Peer-led discussions where members connect and share experiences
- 24/7 Secure Chat: A safe space to talk freely no social media restrictions or censorship
-True Community: Connect with others who truly understand your condition
-In-Person Meetups: Organized local gatherings for deeper support
-Share experiences about conservative treatments
-Reduce feelings of isolation
- Emergency Support: Practical help for symptom flares, CSF leaks, and myelopathy
-Discuss emotional struggle including suicidal ideation. Passive ideation, active ideation and crisis protocol.
-Prepare for surgery and support during the recovery.
Wat we dont do:
-We are not affiliated to any religious group, institution, hospital or authority
-We don’t provide medical care
-We don’t reject anyone, we understand that many in our community are facing financial struggles, especially due to medical expenses. Your support through donations, sharing our cause, or simply spreading awareness can make a big difference!
“just want to say thank you to this group. I was dealing with worsening symptoms; severe head pressure, dizziness, nausea, and vision changes for weeks and no doctor could figure out what was wrong. I was told it was anxiety and that my symptoms didn’t make sense. It wasn’t until I started reading posts here that I realized a thoracic CSF leak could actually be the cause.
The support and knowledge in this space honestly helped me more than the first several doctors I saw. I’m not out of the woods yet. but I wouldn’t even be on the right path without this group. So thank you guys for all the insight and being a great support group too.
Stephanie Callahan
“About six month ago when the pain started I had no idea where to start and who I should see. Thank you so much! I think we can help so many people with painfull conditions ”
S.H